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Cure4Lupus.org

 For Lupus Fighters, By Lupus Fighters.

 

Promoting Lupus Education, Awareness and Research to Find a Cure for Lupus.

Providing Information, Support, Lupus Awareness Products and Merchandise.

 

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"It's Never Lupus"

So what happens when, as in an episode of House M.D., the doctor says it is not Lupus?  This is by far our most commonly asked email question!

  • First, your doctor should be able to explain to you why he made that decision in terms you can understand.

    • Many doctors are undereducated about Lupus.  Doctors will sometimes say things like "you don't have a rash on your face it can't be Lupus".  That is completely untrue!  Only 50% of Lupus patients ever get a rash on their face and for those that do, many of them only have it sometimes.

  • Secondly, if you are at all unsure or uncomfortable with your doctor's assessment, get a second or even third opinion.  Keep going until you get a diagnosis you can understand and be comfortable with.  For 50% of Lupus patients it takes at least 4 years and 3 doctors to be diagnosed.

  • Thirdly, there are many diseases and conditions that "mimic" Lupus. You deserve to know what is causing your symptoms.  If your doctor won't or can't figure it out, find one who can.

    • Some diseases that mimic Lupus: fibromyalgia, lyme disease, scleroderma, multiple sclerosis, rheumatoid arthritis, mixed connective tissue disorder, myositis, rosacea, seborrheic dermatitis, dermatomyositis,  etc.

 

 

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This is not a medical website and information on this site should never be substituted for medical advice.  Always consult a physician before making any medical decisions!

Cure4Lupus.org is a philanthropic organization.  It is not a 501(c)3 non-profit organization.  It does donate most, if not all, of it's profits to 501(c)3 organizations, however it is a for profit business independent of the Lupus Foundation of America or any other organization.