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Cure4Lupus.org

 Toxic Treatments are not a Cure!!

 

Promoting Lupus Education, Awareness and Research. Providing Support, Lupus Awareness Products and Merchandise.  Be part of the cure!

 


 

 

 

 

 

 

 

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Top 15 Visited Pages

(August 28, 2008)

1.  Lupus Symptoms

2.  Malar Rash Pictures

3.  Discoid Lupus

4.  Celebrities & Lupus

5.  Lupus Products

6.  Subacute Cutaneous Lupus

7.  Lupus Diagnosis/Tests

8.  Lupus & Tattoos

9.  Lupus Jewelry

10. ANA Test

11. What is Lupus?

12. Lupus Headaches

13. Lupus Poetry & Humor

14. Lupus Awareness Clothing

15. Vasculitis Pictures

 

 

 

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Political Efforts

We are very active politically, lobbying lawmakers to support Lupus legislation, particularly the Lupus REACH Amendments of 2007.  Living in Iowa we have a unique opportunity to see presidential candidates, hear what they have to say and even speak with them on occasion.  They visit Iowa quite often and sometimes the venues are pretty small and you really get a chance to ask questions, and let your voice be heard.  Below is what we have done to take advantage of this amazing opportunity.

Click the links below to view pictures.

Polk Co Democrats Spring Dinner 5/2/08 - Kendra and Char attended this event hoping to speak with Senator Harkin and Rep. Boswell however their planes were delayed and Rep. Boswell did not make it to the event and Sen. Harkin was only able to stop in for a quick speech.  We did however give a Cure4Lupus.org Logo Button and a wristband to the entertainment for the evening, political comedian Jeff Kreisler.

World Lupus Day Proclamation - On April 11, 2008 we received a copy of the World Lupus Day Proclamation as our Governor, Chet Culver has issued it.

LFA Advocacy Day 3/10-11/08 - Unfortunately Kendra spent 2 days in the hospital and we were unable to make the trip to D.C. this year.  Best of luck to all who made it, hope to see you next year.  You can get more information from the LFA's page found here.

Jefferson Jackson Dinner, 11/10/07 - Another successful event for Kendra and her grandmother.  The goal of this event was to thank Hillary for co-sponsoring the Lupus REACH Amendments.  There were many senators and house members at this event and we did bring top 10 lists, however, as expected we were unable to get near any of them as 9000 people attended this event.  We were told ahead of time that we would likely get a chance to be near Hillary Clinton.  Sure enough, she came down the stairs where we were waiting at her left.  She turned right to us and we both shook her hand and thanked her for co-sponsoring.  We asked if we could get a picture and we did.  We can't wait until the next event!

Elizabeth Edwards Event, 11/3/07 - Kendra was not able to attend but did drop by Lupus Awareness Ribbon cookies.

Polk Co. Democrats Fall Dinner, 10/19/07 - Kendra and her grandmother attended this event and had great success!  They again brought Top 10 lists, but this time, they were able to give them to 4 senators.  First Kendra's grandmother gave it to Joe Biden who thought he had already co-sponsored, 2 days later on Monday he did.  He also stopped by Kendra's table shook her hand and said some encouraging words.  Second they gave it to Tom Harkin, Iowa's senator.  Third they gave it to Chris Dodd's wife to hand to her husband.  Lastly, Kendra handed one to Hillary Clinton who said "oh yeah, I definitely support this, can I keep this?"  They quickly replied yes and spoke briefly with her about it's importance.  She also co-sponsored the legislation within the week.  What an event!

Harkin Steak Fry, 9/16/07 - Kendra and her grandmother attended this event excited to hand out the Top 10 Reasons to Co-Sponsor the Lupus REACH Amendments of 2007 to all the democratic candidates in congress.  However, 12,000 people showed up that day and they were not able to get close to anyone.

Ankeny Days Parade & Summerfest, 7/14/07 - Kendra and Matthew drove the Hillary Clinton float and as is the tradition here in Iowa they threw candy to the spectators, however our candy was attached to cards with Lupus facts on them.  They threw 500 cards in total.  They attended the Ankeny Area Democrats Summerfest BBQ where they spoke with Iowa's US House Member Leonard Boswell.  They thanked him for co-sponsoring the REACH Amendments and invited him to Iowa's Walk for Lupus Now.  He handed the information we gave him to his Iowa office manager and said "Anything we can do to help them, do it".  He did later agree to attend the walk however was held up in Washington and was unable to attend.

Hillary and Bill Clinton @ the Iowa State Fair Grounds, 7/2/07 - Kendra was accompanied to this event by her step-father.  She wore a Cure4Lupus.org T-Shirt, buttons and jewelry.  Kendra's step-father tossed a Cure4Lupus.org Logo Button with a wristband attached to Bill and said "Please give this to Hillary".  Bill looked at the button and replied "will do".  Kendra also spoke with former Iowa Governor and former 2008 presidential candidate about Lupus and Iowa's Walk for Lupus Now.

Hillary Clinton's first town hall meeting, 1/27/07 - Kendra attended this event with her grandmother.  She wore Cure4Lupus.org products and they tried to ask a question about Lupus however Hillary had to leave before she got to their question.

 

 

  

 

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